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The following information about these resources has been provided to AOSW by CancerCare and their 'Helping Hand' resource book. We are grateful for their assistance.
American Brain Tumor Association800-886-2282Exists to eliminate brain tumors through research and to meet the needs of brain tumor patients and their families. Provides educational materials and the opportunity to speak with social workers.
Brain Tumor Society800-770-TBTSStrives to improve the quality of life of brain tumor patients and their families. Distributes information about brain tumors, and provides support to patients and their families. Also raises money to support research on brain tumors.
National Brain Tumor Foundation800-934-CUREProvides information, counseling and patient support services to brain tumor patients and their families. Also provides a newsletter, a patient-to-patient telephone support line, a free resource guide, a list of support groups, and training for caregivers.
Susan G. Komen Breast Cancer Foundation800-I'M AWAREThrough a network of affiliates and fundraising events, fights to eradicate breast cancer as a life-threatening disease. In addition to funding research grants, meritorious awards and educational and scientific programs, the foundation supports education, screening and treatment projects.
Y-ME National Breast Cancer Organization800-221-2141Mission is to ensure that through information, empowerment and peer support, no one faces breast cancer alone. A 24-hour hotline is staffed by trained breast cancer survivors. Affiliates throughout the nation provide support groups, early detection workshops, wigs and prostheses for women with limited resources, and advocacy for breast cancer related policies.
Colon Cancer Alliance877-422-2030Organization of colon and rectal cancer survivors, caregivers, people with a genetic predisposition to the disease and other individuals touched by colorectal cancer. Services include information, a quarterly newsletter, support program and advocacy.
Colorectal Cancer CoalitionNational nonprofit organization that strives to reduce suffering and death due to colorectal cancer. Promotes research for better screening, diagnosis and treatments, encourages policy through grassroots campaigns, and raises awareness.
National Ovarian Cancer Coalition, Inc.888-OVARIANRaises awareness about ovarian cancer and promotes education about the disease. Committed to improving the survival rate and quality of life for women with ovarian cancer.
Gynecologic Cancer Foundation800-444-4441Mission is to ensure public awareness of gynecologic cancer prevention, early diagnosis and proper treatment as well as to support research and training related to gynecologic cancers. Provides education about gynecologic cancers and the central role of gynecologic oncologists in these activities.
EyesOnThePrize.orgProvides information and emotional support from the survivor's perspective to women with gynecologic cancers, their families and friends, and health care providers.
Support for People with Oral and Head and Neck Cancer800-377-0928Provides current information for oral and head and neck cancer patients who are trying to gain a better understanding of their illness. Services include one-to-one support, patient information packets, awareness ribbons and pins, a cookbook and newsletter.
Kidney Cancer Association800-850-9132Funds, promotes and collaborates on kidney cancer research projects, educates physicians and patients about kidney cancer, and advocates at the federal and state level on behalf of patient interests.
Leukemia and Lymphoma Society800-955-4572Financial assistance for specific approved drugs related to the treatment/control of leukemia, Hodgkin and non-Hodgkin lymphoma and myeloma. Processing, typing, screening and cross-matching of blood components for transfusions; infusion of marrow, cord blood or stem cell, transportation to and from a doctor’s office, hospital, treatment center or Family Support Group, initial induction x-ray therapy, x-ray therapy or other procedures according to the specific approval of the national Patient Services Committee. Reimbursement requests, up to a maximum of $500 per year, are processed through local chapters.
Lung Cancer Alliance800-298-2436Advocates on behalf of lung cancer patients, survivors, families, caregivers and those at risk. Programs include the Lung Cancer Hotline, a toll-free information and referral service for people with lung cancer and their caregivers, a peer-to-peer support network, and newsletter.
Lymphoma Research Foundation800-500-9976LRF’s Patient Aid Program provides grants of up to $500, to be used within six months, for quality of life expenses during treatment. Patients can be reimbursed for child care, travel-related costs incurred while obtaining treatment, medical aids and devices, education and support meetings, and cosmetic aids and hygiene products not covered by insurance. Patients who are U.S. citizens, currently receiving treatment for lymphoma, in financial need, may apply.
Leukemia and Lymphoma Society800-955-4572See listing under Leukemia section for further information.
Leukemia and Lymphoma Society800-955-4572See listing under Leukemia section for further information
International Myeloma Foundation800-452-CUREProvides information and services for the treatment and management of multiple myeloma. Services include: a toll-free hotline, patient and family seminars, clinical conferences, a bi-monthly newsletter, and research funding.
Multiple Myeloma Research FoundationA private funder of myeloma-specific research. The website also offers comprehensive and in-depth information on myeloma, its treatments, clinical trials, advocacy, medical programs and research grants.
Pancreatic Cancer Action NetworkDedicated to focusing national attention on the need to find a cure for pancreatic cancer through more research, effective treatments, prevention programs and early detection methods.
Us TOO International Prostate Cancer Education & Support Network800-80-USTOOThrough publications and chapter support groups throughout the United States, helps men and their families learn more about prostate cancer so that they can make better decisions about treatment options and cope with emotional and quality-of-life issues.
Sarcoma Alliance415-381-7236Strives to extend and improve the lives of sarcoma patients through accurate diagnosis, improved access to care, education and support.
Skin Cancer Foundation800-SKIN-490Provides public and professional education programs aimed at increasing public awareness of skin cancer and melanoma, sun protection and sun safety, and skin self-examination. Also focuses on children's education, continuing medical education and international action.
Thyroid Cancer Survivors' Association, Inc.877-588-7904Mission is to help thyroid cancer survivors and their families better understand the disease; to help others learn about the disease; to improve communication between thyroid cancer patients and their healthcare givers; and to support research on thyroid cancer and its treatments.
DISCLAIMER: AOSW makes no representations or warranties, expressed or implied. Providing references to other organizations or links to other websites does not imply that AOSW endorses the information or services provided by them. Those organizations are solely responsible for the information they provide.
Please feel free to email info@aosw.org with changes, comments, or suggestions.
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